About us

Unfortunately there is still no cure for Cystic Fibrosis. This is something we hope to change...

We are a group of mums, dads, aunties, friends and selfless volunteers united with a common goal – to improve and extend the lives of those living with Cystic Fibrosis.

Our journey started when a small group of parents of children with Cystic Fibrosis (CF) decided to raise money for Cystic Fibrosis WA (CFWA). As a result of this, the 65 Roses Grand Ball for CF was born and almost $43,000 was raised at our first Ball in 2002. Today the annual Capel Vale Conquer Cystic Fibrosis Grand Ball is held along with several other fundraising events including the popular Bingo for Conquer Cystic Fibrosis that is held twice per week. These events help keep the funds flowing to the medical researchers who have the potential to save the lives of our loved ones living with this disease.

From our inaugural event to today, CCF has raised more than $2.5 million for CF research. Several of the research projects funded by CCF are being used in clinical care today. Research is the key to granting those with CF the opportunity to live a full life. In the 1960s the life expectancy for those living with CF was 5. Today, it is 37. Medical researchers has driven that growth and they need our support to find the cure.

Our Amazing Volunteers

The Conquer Cystic Fibrosis Grand Ball Committee

  • Susan Andrews
  • Taryn Barrett
  • Kara Beatty
  • Annette Boyle
  • Paula Butchart
  • Fiona Byrne
  • Lisa Carroll
  • Caroline Claydon
  • Rob Enderbrock- Brown
  • Wendy Endebrock-Brown
  • Kylie Guerriero
  • Cathy Halvorson
  • Carmen Irwin
  • Leanne O’Dea
  • Rita Pahl
  • Jo Ramsden
  • Denise Rothwell
  • Sue Wake

Volunteers

Yes, we can always use more help! If you have one hour, or many hours, please contact us.

volunteers@conquercysticfibrosis.com

You might have a special skill we need, or you might just be full of good ideas and energy. We are a friendly, no pressure group just doing what we can. So whether you wish to be on the Grand Ball Committee, help at a function or find donations, we’d love for you to join us.

We would also love families to get involved and host their own fundraiser whether it’s a sausage sizzle, sporting event participation or a grand cocktail party – we need your support and every effort makes a difference.

We are also happy to hear from people with Cystic Fibrosis who want to share their story, write a blog piece or help us promote our message.

Projects

Conquer Cystic Fibrosis (CCF) has funded more than 25 research projects and continues to support research through two primary channels

Institute of Respiratory Health

In 2015, CCF formed a partnership with the Institute of Respiratory Health which is situated in Nedlands.

Thanks to a $1 million commitment over five years, the Conquer Cystic Fibrosis Research Program was born.

This program funds three new postgraduate PhD Scholarships. These scholarships will foster careers in Cystic Fibrosis (CF) research and improve the adult care offered to all those living with CF in WA. It is hoped that the scholarships will help to attract and retain top clinicians in our State. Contact us for more information.

Australian Cystic Fibrosis Research Trust:

The Australian Cystic Fibrosis Research Trust (ACFRT) seeks to allocate funds for high quality research at a national level. The Trust will only support research that has been assessed and recommended by the scientific community. The Trust along with the help of CCF funds has a research study underway, conducted by the University of Wollongon with conferring institutions, the University of NSW and Nanyang Technological University. This research will explore multi-action antibiotics to treat chronic biofilm infections. The ACFRT have agreed to fund this project over three years up to $588,687.00. Contact us for more information.