People with Cystic Fibrosis can look completely healthy on the outside, and thanks to medical advances, most can go to school, work, socialise, travel and play sports. But behind the scenes, the daily treatment routine is relentless.
Most people with CF manage a demanding schedule that can include:
- 25 to 40 tablets every day
- Chest physiotherapy
- Breathing treatments, inhalers and nebulisers
- A tailored diet and exercise program to support lung function
- Regular hospital stays for IV antibiotics
- And when lung damage becomes too severe, some may require life‑saving organ transplants, most commonly lungs and sometimes a liver.
A surprising fact for many is that 1 in 25 people are carriers of the CF gene and most have no idea. When two carriers have a child, there is a 1 in 4 chance that their child will be born with Cystic Fibrosis.