5 June 2022

Tea Tastic Tea Party – Sold Out

If you missed out on a ticket to the “Tea Tastic Tea Party” don’t despair, we have some great news for you!!

We have an online silent auction for the event that is proving to be very popular with a number of early bids being placed!  You too can jump on line and check it out! Who knows you might grab yourself a bargain!

Yes, that’s right…  you too can register and bid on any items, even if you missed out on a ticket to the tea party.

To view all the items you will need to register or simply scan the QR Code below.

Happy bidding everyone!

4 June 2022

UBX Scarborough Open Day

We are thrilled the team at UBX Scarborough have chosen Conquer Cystic Fibrosis to be the beneficiary of their annual open day this year.

The team at UBX want everyone to experience the benefits of training like a boxer.  So next Saturday (4th of June) there opening their doors to the local community with everyone invited to experience a free UBX workout!

What better way to give the UBX workout a try, why not bring along a friend too!

On the day there will be raffles, prizes, competitions and much, much more to help spread awareness of Cystic Fibrosis including:

+ Live DJ

+ Food and Drink

+ FLASH SALE

+ Raffle

+ In club competitions

So come on down to UBX Scarborough, 25 Scarborough Beach Road, Scarborough on Saturday June 4 from 7am, and enjoy a great workout for our cause.

14 May 2022

Hello dolls…

We are thrilled to be able to share with you that the MC at the Tea Tastic Tea Party for Conquer Cystic Fibrosis is none other than the spectacular Famous Sharron!!

Famous Sharron is very famous for nothing at all.

You’ve seen her on every TV channel, in Elle Magazine, TV Week and all over the internet.

She’s the multi-award winning Face of Wah (WA), the Glambassador for Event Cinemas – Chicks at the Flicks, ART ON THE MOVE and the Art Gallery of Western Australia.

Find her on the socials @famousharron (two R’s – one of them’s silent).

Click here to purchase one of our few remaining tickets to the tea party.

12 June 2022

Tea Tastic Tea Party for CCF

An afternoon not to be missed…  High Tea, free flowing bubbles, door prize, silent auction, raffles, passionate speakers and lots more.

As a 100% volunteer-run charity, every cent we raise from this event will support research to help find the cure for Cystic Fibrosis (CF). CF is a cruel disease and there are now more than 3400 Australians currently living with it.

Conquer Cystic Fibrosis supports research through the Telethon Kids Institute, Institute of Respiratory Health and Australian Cystic Fibrosis Research Trust.

When: Sunday 12 June 2022

Cost: $70 per person

Dress: “Tastic”

Where: Midland Town Hall 312 Great Eastern Highway Midland

Tables seat 10

Click here to book your tickets.

If anyone with CF is planning on attending the tea party please note that the current national guidelines on cross infection will apply.

The safety of our guests, volunteers and the wider community is our absolute priority and therefore this event has been organised as a COVID-19 safe event.  As a result, all attendees aged 16 years and over must be fully vaccinated against COVID-19 and be able to provide proof of vaccination.

This requirement is in line with the Public Health Order issued by the Government of Western Australia.

We appreciate your understanding.

12 March 2022

Walk the Talk 2022 – Postponed

Unfortunately due to the recent high cases of COVID-19 in Western Australia, and considering the health and safety of you, our loyal Conquer Cystic Fibrosis supporters, we have decided to postpone the 2022 Walk the Talk walk for Conquer Cystic Fibrosis.

We feel that it is important that we keep our supporters safe, and importantly give you the confidence to join in and mingle amongst other people on the day. While the event is a COVID 19 safe event with every precaution being put in place, we feel that changing the date of the event is important given these unprecedented times.

As a result the Walk the Talk walk for Conquer Cystic Fibrosis will rescheduled to take place later in 2022.

12 February 2022

Stan and Foxy supporting CCF

One of our amazing volunteers, Leanne, is now officially an author!

Leanne recently published her first children’s book but what is so much more special is that Leanne is donating all proceeds of the sales of the book to Conquer Cystic Fibrosis.

This beautifully illustrated book is available to purchase for $10.00

Stocks are limited so get in quick to purchase your own signed copy of this gorgeous tale while at the same time donating to our cause!

To purchase your copy please contact Leanne.

Thank you so much Leanne for your ongoing love and support of Conquer Cystic Fibrosis.

Sunday 23 January 2022

Lawn Bowls Sundowner for CCF

On Sunday 23rd January Lara Vlahov and her family held a Sundowner Lawn bowls event at the Cambridge bowls club. The event was a huge success and they were able to raise an amazing $18,000.00 on the day.

The money raised at the event has been divided between Conquer Cystic Fibrosis (CCF) and The Cancer Council.  These are two causes very close to Lara and her family’s heart.

The wonderful Jayde Kinane was Lara’s cousin and although she is no longer with us her family continue to raise money and do all that they can to support CCF and those impacted by Cystic Fibrosis.

Thank you from the bottom of our hearts to everyone involved in organising this event.

10 April 2022

Walk the Talk 2022 – Postponed

We hope you can join us on Sunday, 10 April 2022, to take part in our second walk to raise awareness of organ donation and raise money to fund Cystic Fibrosis (CF) related research.

Where: Burswood Park Perth 9.00am (Registration from 8.30am)

Cost: Adults $50.00 per person

Children (aged 5 – 17) $20.00 per person

Family Pass 2 x Adults and 2 x Children $130.00

Children under the age of 5 are free.

If you are not able to join us on the day you can also sign up to be a virtual walker.

Virtual Adults $50.00 per person

Virtual Child $20.00 per person

The safety of all walkers, volunteers and the wider community is our absolute priority at Conquer Cystic Fibrosis and therefore the walk has been organised as a COVID-19 safe event.  As a result, in order to participate in the walk, all walkers aged 16 years and over must be fully vaccinated against COVID-19 and be able to provide proof of vaccination at registration.

This requirement is in line with the Public Health Order issued by the Government of Western Australia.

Mandatory contact registration and increased hygiene measures will be in place and will also apply to this event.

To book your tickets please click here

This year’s event has been inspired by CCF ambassador Kaila Maartensz.

Kaila was diagnosed with CF at 3 months of age. At 25 Kaila’s health deteriorated and she was placed on the organ recipient list. It was heart breaking to watch Kaila struggle to breathe, talk and walk over the next 2 long years until finally she received her new lungs.  Kaila’s husband Matt was by her side throughout her transplant and the days, weeks, and months to follow.

Matt also suffered from CF being diagnosed at birth.  Unfortunately he endured many health issues while he was growing up and in 2014 Matt was also placed on the transplant list.  Matt received his new lungs 3 days later.

Following his transplant Matt was busy managing his personal training business. He had also just started his own gardening business when rather quickly, he started to feel unwell.  Matt was subsequently admitted to hospital and sadly his condition deteriorated further.  Tragically Matt passed away on 30th March 2018.  He was just 29 years of age.

Despite the tragic loss of Matt, Kaila continues to advocate for Conquer Cystic Fibrosis and organ donation.   Thank you Kaila so much from the bottom of all our hearts.

To help us raise as much money as possible, we encourage all walkers to register on our Give Now page. Here you will be able to create your own individual fundraising page with personal photos and include your own story about why you are doing the walk.  This will allow your family and friends to support you and make a donation on your behalf to Conquer Cystic Fibrosis.

When you register your Crowdraiser please use the “Walk the Talk” title on your page title with your name. (e.g. Rita’s Walk the Talk for CCF).

All money raised from the walk will fund vital CF related research.

As a 100% volunteer run charity, every dollar you raise will help us to achieve our goal to Conquer Cystic Fibrosis!

5 January 2022

Buy a burger and support CCF!

Happy New Year everyone!

Wow we have kick started 2022 in such a fantastic way by being selected by Grill’d Subiaco to participate in the Local Matters program throughout January!

However we need your support…

All you need to do is pop into Grill’d Subiaco order a burger and you’ll be given a token to vote in-restaurant or online. Simply place your token in the CCF jar to vote for our cause.

What better excuse to pop out and enjoy a delicious Grill’d burger right?

1 January 2022

Our Year in Review

It’s been another rollercoaster year but, with your support, we have continued on our mission to Conquer Cystic Fibrosis.  While we were not able to host the Capel Vale Conquer Cystic Fibrosis Grand Ball this year, we were fortunate to be supported by Bingo for Conquer Cystic Fibrosis and a range of other fundraising activities including:

  • The annual Dare to Care Swim
  • The inaugural ‘Walk the Talk’ Walk
  • Gabriella’s 60km walk in honour of Jayde Kinane
  • The 70km Cape to Cape walk by Holly and her friends
  • The CCF Angels giving program
  • Ascot Race Day event
  • Little Cotta Co. pop up shop in honour of Jayde Kinane
  • Busselton-Geographe Bay Rotary Club Golf Day and cocktail party on the jetty
  • Plant selling by Bella Fairbrass
  • Kalea Co fundraising support by Kiah
  • Crazy Hair Day at Bunbury Cathedral Grammar School
  • The wedding of Kate and Peter
  • Leanne’s Christmas Wreath making

Through this support, and the support of very generous individual donors, CCF has been able to establish and contribute to very significant research projects, including the following:

  • $200,000 to the Institute for Respiratory Health as part of our $1m commitment to CF adult research.
  • $100,000 to the Australian Cystic Fibrosis Research Trust to fund two CF research grants (respiratory and gastroenterology)
  • $200,000 to the Telethon Kids Institute for a research project targeting the window of vulnerability in young children with CF.
  • $7500 to CFPhysio.com Inc for the development of online resources to support people with CF, their caregivers and CF physiotherapy.
  • $83,000 to establish the Anna Tai fellowship. The Anna Tai fellowship will ensure the CF and Bronchiectasis Research Group can continue to investigate how patients may benefit from novel drug therapies, diagnostic imaging techniques, molecular epidemiology of infection and psychosocial interventions right here in WA. The group are recognised as world leaders and have an extensive collaborative network.

CCF was also able to donate $10,000 to Cystic Fibrosis WA for support services.

The projects we have been able to support all have the potential to drastically improve CF care and outcomes worldwide and extend lives.

In reflection, the loss of our beautiful advocate and friend Jayde Kinane in October left us all devastated but more determined than ever to continue on our mission.  CF is a cruel disease and, ultimately, we need a cure.

So as we begin 2022 we would like to take this opportunity to say thank you and wish you all a very Happy New Year.