$50,000 donation kick starts global developments in CF care

Research of global significance is well underway here in WA and that is all thanks to your generosity!

We are thrilled to announce that we recently handed over $50,000 to the amazing CF research team at the Telethon Kids Institute. Those funds will fund an exciting Artificial Intelligence project which has the potential to drastically improve CF care worldwide.

We also received an update on the $20,000 we granted to the Institute last year which kick started an international collaboration of experts looking at a new molecular method which detects Aspergillus. It does so by looking for its DNA samples taken during a bronchoscopy. That project is showing immense promise and Dr Luke Garratt is leading this work with collaborators in Singapore who are now contributing more than $80,000.

For those who may not be aware, Aspergillus is the main fungus cultured in the airways of patients with CF and it is associated with airway damage and lung function decline.  Better detection leads to quicker and more effective treatment to reduce the damage this fungus inflicts.

The delivery of these funds and the success of the Institute’s research so far is great news for the 3300 Australians with Cystic Fibrosis.

One of those is 4-year-old Connor Barrett (pictured) whose future looks much brighter thanks to the clever minds and dedication of the Telethon Kids Institute team.

He is pictured with Development Manager Erin Hurson and world-renowned researcher and clinic Professor Stephen Stick to celebrate the big leaps forward.

However that’s not where the Conquer Cystic Fibrosis  contributions stop.

This year we are also granting funds to the Institute for Respiratory Health ($200,000), the Australian Cystic Fibrosis Research Trust ($100,000), Cystic Fibrosis WA ($10,000) and purchasing a state-of-art Ex Vivo Lung Perfusion machine which will improve the safety of transplants at Fiona Stanley Hospital ($280,000). More updates to come on those donations.

We are incredibly proud of these achievements considering we are a 100% volunteer-run charity started only 16 years ago right here in WA.

Thank you for making a difference.

Saturday 18 May 2019

A very BIG Thank You!

THANK YOU!!!

To everyone who attended to the Capel Vale Conquer Cystic Fibrosis Grand Ball 2019.   As a result of your support and all of our generous donors, we raised an incredible $197,426.73 (profit) on the night!

  This brings the total raised by Bingo for CCF, all other CCF related fundraisers and donations in the last 12 months to an incredible

$496,924.66 

(Profit!!)

This means we will be able to purchase the Ex Vivo Lung Perfusion machine immediately!

Because we are a 100% volunteer run charity, it also means we will be able to continue grants of over $200,000 to the Institute for Respiratory Health, the Telethon Kids Institute, the Australian Cystic Fibrosis Research Trust and CFWA for vital Cystic Fibrosis research and services again this year.

From the bottom of all our collective hearts at CCF – THANK YOU to everyone who is supporting us to Conquer Cystic Fibrosis

 

4 May 2019

Let the bidding begin!!

The auction site for all items available at this year’s Capel Vale Conquer Cystic Fibrosis Grand Ball is now open!

You don’t need to be at the Ball to bid and win – simply log on and start bidding.

It is quick and easy. Click on the item you are interested in and place your bid. If you are out-bid, you will be notified by text!

We have everything from extremely rare and limited Aboriginal art by internationally acclaimed Aboriginal artist “Wadgee” Sheila Humphries, to Capel Vale Wines, accommodation (in Dunsborough, Geographe Bay, Myalup, Malayisia and Dubai), restaurant vouchers, jewellery, kids’ toys, Eagles and Dockers memorabilia, and a 10Kg block of chocolate. There is definitely something for everyone!

Bidding is available from now until 11pm on the night of the Ball (18 May 2019).

Don’t miss out! Log on and start bidding now!

26 April 2019

Thank You to our wonderful wrappers!!

Yesterday was an early start for the CCF team as we embarked on our storage unit at Storage King Landsdale for our annual wrap day for all our tombola and silent auction items for the Ball.

Five lovely friends of our committee member Fiona joined us and they blitzed through all the wrapping! Thank you ladies, with your help we managed to get through all the wrapping in no time!  From everyone at CCF we would like to extend a huge thank you to Tracey Brooke, Jude Dunford, Sandy McKenzie, Gail Abbott and Jacky Edwards.

Every little bit helps and your support will go a long way to helping us raise the money we need to find the cure for Cystic Fibrosis.

We would also like to acknowledge Lisa at Storage King Landsdale for her ongoing support. Each year at wrap day we pretty much take over the storage unit and she happily lets us get on with what we need to do. Thank you again so very much Lisa.

Pictured below are the wonderful ladies that came along to help us!  We are all getting very excited for the Ball this year.

Tickets are selling fast so make sure you get yours today!!

    

To celebrate receive 25% discount from your wine purchases.

16 years of Capel Vale Wines Gold Sponsorship

This year we are thrilled to be celebrating 16 years of Capel Vale Wines Gold Sponsorship of the Conquer Cystic Fibrosis Grand Ball.

To celebrate this amazing milestone the wonderful team at Capel Vale Wines is offering you a 25% discount off your wine purchases!

Don’t delay, to take advantage of this very generous offer simply go to the Capel Vale online wine shop by clicking here.

Once you have placed your order please apply the coupon code “CFBALL2019”. By applying this code 25% will be automatically deducted at the checkout.

A number of additional wines have been added to this deal so don’t miss out order yours today!!

“Love Wine, Love Capel Vale”

2019 WA Volunteer of the Year Awards

We need your vote!

The amazing Peter Manwaring was recently announced as one of 10 finalists in the Community News – Perth – People’s Choice ‘Spirit of Volunteering’ Award for the 2019 WA Volunteer of the Year Awards.

Peter, along with his wife Lisa, are two of the biggest supporters of our cause.  They have no direct family connection to Cystic Fibrosis yet they spend countless hours running Bingo sessions for hundreds of participants two to three times each and every week.

Bingo for Conquer Cystic Fibrosis has grown considerably since its inception and has raised a whopping $1 MILLION for our cause!

The research this considerable funding allows has potentially life-saving implications.  It is funding research through the Telethon Kids Institute, Institute for Respiratory Health at QE11 and the Australian Cystic Fibrosis Research Trust.

So, while CF families are busy with treatments, appointments and hospital admissions, the Manwaring family and their volunteers are taking the load off by taking the lead. day in, day out, they grant the gift of hope to the entire Cystic Fibrosis community in WA.

This really is the true spirit of volunteering.

So please show your support and vote for Peter now 

The 2019 Capel Vale Conquer Cystic Fibrosis Grand Ball

Tickets on sale now!!

Tickets to the Capel Vale Conquer Cystic Fibrosis Grand Ball are on sale now!

Tickets are selling fast so don’t delay purchase yours today!!

Tables seat 10!

To sign up and become a member of the Capel Vale Wine Club simply click here

To be kept up to date with this, and other CCF events, please “like” and “share” our Facebook page.

2019 Capel Vale Conquer Cystic Fibrosis Grand Ball

Save the Date

 

Mark your calendars!

You’re invited to join us at

The Capel Vale  Conquer Cystic Fibrosis  Grand Ball 2019

Date: Saturday 18th May, 2019

Time:  7.00pm

Venue: Crown Perth Grand Ballroom

Cost: $210.00 per person

Dress: Formal

Tickets on sale 25 March 2019

As a 100% volunteer run organisation, ALL proceeds raised at the Ball will benefit Cystic Fibrosis research.

Would you like to do more to help us find the cure?  You too can join our increasing number of CCF Angels by making a regular donation to CCF.

For more information about the CCF Angels program please email us or sign up by clicking here

You can also keep up to date with all the CCF news including information about the release of Ball tickets via our Facebook page.  Simply visit and like our page for more information.

15 December 2018

Super Bingo for CCF

SUPER BINGO for CCF!!

When: Saturday 15th December 2018

Where: Robinson Pavilion, Claremont Showgrounds

Time: Doors open 9am Eyes Down 12noon

Cost: Tickets $42 – tickets are limited to one ticket per person

Don’t miss out purchase your tickets today!

25 August 2018

Take your Breath Away Swim for Conquer Cystic Fibrosis

On Saturday 25 August 2018 more than 20 swimmers will be taking part in the Dare to Care – “Take your Breath Away” Swim for Conquer Cystic Fibrosis.

The swimmers will all be plunging into the freezing, jelly fish infested Swan River to take part in a one kilometre open water river swim in “English Channel” conditions!!  EC rules apply to the event which means the swimmers will not be permitted to use any swim aids or wetsuits.

The swimmers must make a minimum pledge of $500 to compete in the swim.  The competitors have all been busy raising donations to be able to compete.  Each swimmer has created their own individual fundraising page with photos and their own story about why they are doing the swim!

If you would like to support the amazing swimmers involved with the swim simply click here.