We would like to express our deepest gratitude for your support of our cause and your visionary outlook towards a future where dreams can indeed become a reality for children like Norah.

Today, we are excited to share some significant news that will significantly aid us in our mission to find the cure for Cystic Fibrosis (CF).

Thanks to the support of the Western Australian State Government, crucial Cystic Fibrosis (CF) research in Western Australia has received a substantial boost of $2 million.

This achievement is the result of an innovative partnership between the Western Australian State Government, Conquer Cystic Fibrosis, and Cystic Fibrosis WA.

Your generous contributions, and the dedication of the remarkable volunteer team at Conquer Cystic Fibrosis, allowed us to donate $500,000.00 to this fund, and CFWA made an equivalent donation. This combined $1M contribution was then matched by the Western Australian State Government, culminating in this very impressive total.

We extend our thanks to the Minister for Medical Research the Hon. Stephen Dawson MLC, who announced this development as a part of the Future Health Research and Innovation Fund, which Western Australian researchers in the CF field can now access. This commitment brings substantial hope to the 3,700 Australians living with cystic fibrosis and the countless others who care for them.

Our vision for children like Norah includes the possibility of dreaming big, pursuing careers, traveling, having families, and growing old. We fervently hope that her future will involve fewer struggles with pain, medications, treatments, and hospitalisations.

Medical research is the key to realising our dreams, and today’s collaborative effort deserves recognition and celebration.

Pictured above at the announcement is CCF Committee of Management volunteer Annette Boyle.

We are incredibly excited to announce that over the past 9 years, Bingo for Conquer Cystic Fibrosis has raised $2.5 million for our cause. That is a phenomenal milestone reached by our biggest donors. These funds enable our volunteer-run charity to continue to support life-extending research for the 3700 young Australians living with CF.

To celebrate this milestone, Bingo attendees at any of the sessions will receive a free raffle ticket to go in draw for a $2500 spot prize which will be drawn at the Mega Bingo event on Wednesday, November 6. So please ensure you share Bingo with Conquer Cystic Fibrosis with your friends and ensure even more people head along to support these great events now and into the future. Bingo is held from 7.30pm at Midland Sports Club on Mondays, Balcatta’s Vasto Club on Wednesdays and Kingsway’s Olympic Soccer Club on Fridays.  Follow the Bingo for Conquer Cystic Fibrosis Facebook page for all the details.

We thank Peter and Lisa Manwaring, and all their volunteers, for enabling this all to happen. Week in, week out – the Bingo team are absolute powerhouses.

We present to you the wonderful photos taken at the Soirée on the Swan Event by Rift Photography.

To check out the photos please click here

We are ever so very grateful to Rift Photography, our amazing volunteers and major sponsors, particularly Dormilona Wines and Rocky Ridge Brewing Co, for making our Soirée on the Swan such a resounding success.

Thanks  to your amazing support on the night we raised more than $83,000 (profit) for vital CF research! 

From all of us at CCF we thank you from the bottom of our collective hearts.

The Soiree on the Swan Silent Auction is NOW LIVE!

Don’t miss out Place Your Bids Today!

Unable to attend the event? You can still help us to make a difference in the fight against Cystic Fibrosis!

Whether you are attending the Soiree or not, you still have the chance to bid on some incredible lots in our silent auction!

The silent auction closes at 10.30pm on the night of our Soiree on the Swan event (15 June).  All successful bidders will be notified electronically.  If you are not at the Soiree, we will ensure your prize reaches you.

To register to bid simply hold your phone camera over the QR code below.

We were so excited to receive an extra special donation from the wonderful ladies who play gold at the Mount Lawley Golf Club.  CCF were fortunate to be named as the beneficiaries of their fundraising events throughout 2023. As a 100% volunteer run organisation, donations like this from caring community groups, help us greatly in continuing to support the researchers who are working hard to extend the lives of those living with Cystic Fibrosis.

A familiar face and voice will take centre stage the Capel Vale Conquer Cystic Fibrosis Grand Ball this Saturday, May 20.

MAFS contestant and prominent cystic fibrosis advocate Lyndall Grace will be the keynote speaker and will also sing in front of more than 840 guests at the Crown Grand Ballroom.

The event has had a three-year hiatus due to Covid but the Cystic Fibrosis community will celebrate its return which coincides with 20 years of fundraising by the volunteer team.

“Our grand ball will be a chance to unite to celebrate the success of our charity and the many advancements in research over the past 20 years,” CCF Chair Wendy Endebrock-Brown said.  “However, this will also be bittersweet reunion because our community has experienced ongoing heartbreak in recent years with the deaths of previous keynote speakers, advocates and friends Jayde Kinane, Adam D’Aloia and Coen Ashton.

“These beautiful young people died far too soon because of this disease and we will never stop supporting research while Cystic Fibrosis continues to claim young lives and devastate families.”  Mrs Endebrock-Brown was one of the founding parents of children with CF who started fundraising 20 years ago and set up the charity.

Lyndall said she jumped at the opportunity to share her story in the hope of boosting research funds.  “The beauty of Conquer Cystic Fibrosis is that it is 100 per cent volunteer run so all the funds go to research to help extend lives like mine,” she said.  “If it wasn’t for medical breakthroughs, there is no chance I’d be standing here today.

“I grew up believing I’d die before my 26^th birthday but I’ve been well cared for by the WA CF specialists here and I recently gained access to the revolutionary medicine Trikafta.  “I am not only alive because of it but I now have a tangible hope of growing old.  “However, despite the advances, we still have a long way to go and the deaths of friends with CF are tragic reminders of why we have to keep supporting the research into the vast complications of this disease.  “The death of my beautiful friend Jayde Kinane at just 21 years of age should never have happened so for her and others, I will do all I can to keep having our community’s voice heard.

“When I take to the stage to sing and speak at the ball, it’s not just about my personal battle with this disease but all those alongside me and all those who come after me.”

In 2017, Lyndall opened the event singing a touching rendition of ‘Like I’m Going to Lose You’ by Meghan Trainor.  Funds raised by CCF go to the Telethon Kids Institute, Institute of Respiratory Health and Australian Cystic Fibrosis Research Trust. The charity has also purchased a $280,000 machine for Fiona Stanley Hospital to make lung transplants safer.

We would like to share with you the outcome of an extra special fundraiser which honours a beautiful Bunbury grandmother who was entirely devoted to her family. Ann Lloyd sadly passed away on Boxing Day at the age of 70. Her friend and colleague set up a GiveNow In Memoriam page which has raised almost $5,000.00 in Ann’s honour.

Ann’s youngest grandson Connor has CF and she took every opportunity to support our cause and raise awareness for more life-extending research.  Her last opportunity to support Connor in lieu of flowers is a bittersweet one but her loved ones know it’s exactly what she would have wanted.

Pictured below is Ann with her grandson Connor.

 

If you missed out on a ticket to the “Tea Tastic Tea Party” don’t despair, we have some great news for you!!

We have an online silent auction for the event that is proving to be very popular with a number of early bids being placed!  You too can jump on line and check it out! Who knows you might grab yourself a bargain!

Yes, that’s right…  you too can register and bid on any items, even if you missed out on a ticket to the tea party.

To view all the items you will need to register or simply scan the QR Code below.

Happy bidding everyone!

Unfortunately due to the recent high cases of COVID-19 in Western Australia, and considering the health and safety of you, our loyal Conquer Cystic Fibrosis supporters, we have decided to postpone the 2022 Walk the Talk walk for Conquer Cystic Fibrosis.

We feel that it is important that we keep our supporters safe, and importantly give you the confidence to join in and mingle amongst other people on the day. While the event is a COVID 19 safe event with every precaution being put in place, we feel that changing the date of the event is important given these unprecedented times.

As a result the Walk the Talk walk for Conquer Cystic Fibrosis will rescheduled to take place later in 2022.

One of our amazing volunteers, Leanne, is now officially an author!

Leanne recently published her first children’s book but what is so much more special is that Leanne is donating all proceeds of the sales of the book to Conquer Cystic Fibrosis.

This beautifully illustrated book is available to purchase for $10.00

Stocks are limited so get in quick to purchase your own signed copy of this gorgeous tale while at the same time donating to our cause!

To purchase your copy please contact Leanne.

Thank you so much Leanne for your ongoing love and support of Conquer Cystic Fibrosis.

On Sunday 23rd January Lara Vlahov and her family held a Sundowner Lawn bowls event at the Cambridge bowls club. The event was a huge success and they were able to raise an amazing $18,000.00 on the day.

The money raised at the event has been divided between Conquer Cystic Fibrosis (CCF) and The Cancer Council.  These are two causes very close to Lara and her family’s heart.

The wonderful Jayde Kinane was Lara’s cousin and although she is no longer with us her family continue to raise money and do all that they can to support CCF and those impacted by Cystic Fibrosis.

Thank you from the bottom of our hearts to everyone involved in organising this event.

Happy New Year everyone!

Wow we have kick started 2022 in such a fantastic way by being selected by Grill’d Subiaco to participate in the Local Matters program throughout January!

However we need your support…

All you need to do is pop into Grill’d Subiaco order a burger and you’ll be given a token to vote in-restaurant or online. Simply place your token in the CCF jar to vote for our cause.

What better excuse to pop out and enjoy a delicious Grill’d burger right?

It’s been another rollercoaster year but, with your support, we have continued on our mission to Conquer Cystic Fibrosis.  While we were not able to host the Capel Vale Conquer Cystic Fibrosis Grand Ball this year, we were fortunate to be supported by Bingo for Conquer Cystic Fibrosis and a range of other fundraising activities including:

• The annual Dare to Care Swim
• The inaugural ‘Walk the Talk’ Walk
• Gabriella’s 60km walk in honour of Jayde Kinane
• The 70km Cape to Cape walk by Holly and her friends
• The CCF Angels giving program
• Ascot Race Day event
• Little Cotta Co. pop up shop in honour of Jayde Kinane
• Busselton-Geographe Bay Rotary Club Golf Day and cocktail party on the jetty
• Plant selling by Bella Fairbrass
• Kalea Co fundraising support by Kiah
• Crazy Hair Day at Bunbury Cathedral Grammar School
• The wedding of Kate and Peter
• Leanne’s Christmas Wreath making

Through this support, and the support of very generous individual donors, CCF has been able to establish and contribute to very significant research projects, including the following:

• $200,000 to the Institute for Respiratory Health as part of our $1m commitment to CF adult research.
• $100,000 to the Australian Cystic Fibrosis Research Trust to fund two CF research grants (respiratory and gastroenterology)
• $200,000 to the Telethon Kids Institute for a research project targeting the window of vulnerability in young children with CF.
• $7500 to CFPhysio.com Inc for the development of online resources to support people with CF, their caregivers and CF physiotherapy.
• $83,000 to establish the Anna Tai fellowship. The Anna Tai fellowship will ensure the CF and Bronchiectasis Research Group can continue to investigate how patients may benefit from novel drug therapies, diagnostic imaging techniques, molecular epidemiology of infection and psychosocial interventions right here in WA. The group are recognised as world leaders and have an extensive collaborative network.

CCF was also able to donate $10,000 to Cystic Fibrosis WA for support services.

The projects we have been able to support all have the potential to drastically improve CF care and outcomes worldwide and extend lives.

In reflection, the loss of our beautiful advocate and friend Jayde Kinane in October left us all devastated but more determined than ever to continue on our mission.  CF is a cruel disease and, ultimately, we need a cure.

So as we begin 2022 we would like to take this opportunity to say thank you and wish you all a very Happy New Year.

 

Christmas is a time of celebration happiness and goodwill. More importantly it is a time of bringing hope to the 3400 Australians and their families living with Cystic Fibrosis.

No Cystic Fibrosis story is the same… however, this condition is life-limiting and relentless. Our amazing group of volunteers strive for a world where all children can live a life unaffected by Cystic Fibrosis.

This Christmas, we need your support more than ever.  Cystic Fibrosis never takes a break, and neither do we.

You can help us to continue our fight against Cystic Fibrosis by making a donation to the Conquer Cystic Fibrosis Christmas Appeal. With your generous support we can continue to fund the lifesaving research needed to find the cure.

Pictured below is baby Charlie (who has Cystic Fibrosis) with his big sister Matilda.  Charlie has had a rough start to life with surgeries on bowel blockages and IV’s for respiratory infections. He still manages to smile though and is adored by his big sister.

We cannot thank you enough for your ongoing support during what has been very challenging times for everyone.

From all of us at Conquer Cystic Fibrosis we wish you all a very Merry Christmas.

We are so sorry to report that we have made the difficult decision to postpone next Friday’s Festival of Frights Halloween event.

We are looking at holding another event at the Perth City Farm in the months ahead but to date no firm plans have been made. All tickets sold for the festival of frights have been refunded.

The CCF team are grieving right now and we need time to pay tribute to our beautiful Jayde who tragically passed away on Monday 18 October 2021.

Please be assured though, as Jayde would have wanted, we will be back soon hosting events to continue raising the funds to support life-extending research into the devastating disease cystic fibrosis is.

We thank you for your understanding.

Jayde you truly were a CF warrior.  We will all miss you so very much x

Through the support of our wonderful donors and supporters, over the past 19 years, we have donated almost $1M to the Australian Cystic Fibrosis Research Trust.

The Trust enlists a scientific panel, with consumer support, to assess applications by researchers to determine where this money is best spent. Some projects funded through the Trust are now being used globally in clinical care and we are proud to be a part of this.

This week, grant submissions were called to spend our most recent donation. This is the second time we have funded a gastro-intestinal research project because it is an area of great need. It is currently the only CF-specific GI grant opportunity in Australia. However as our community knows, the digestive pain, surgeries and lifelong GI complications are an immense burden on the 3400 Australians living with CF. CF is more than a lung disease and that is why we are proud to support more research in this field.

GRANT ALERT

Conquer CF (GI) Innovation Grant 2021

This grant is looking for ‘big thinkers’ with great innovative ideas who will make a difference through research to the CF community.  It is open to post-doctoral researchers, scientists, clinicians, medical practitioners, nurses and allied health currently working in the area of cystic fibrosis (CF) or proposing to work in CF research in the gastro-intestinal (GI) field. GI is defined here to include any part of the GI tract, as well as directly related issues such as nutrition and digestion, and closely associated organs and tissues such as the pancreas, liver and kidney. The researchers will have completed their studies in CF or a related area within the past five years.

The Conquer CF (GI) Innovation Grant will allow a CF researcher to explore novel concepts at the initial feasibility stage. Innovative applications relating to GI aspects of CF are encouraged, even those lacking pilot data. The grant aims to allow the researcher to generate sufficient data within the one-year grant period to be in a position to apply for additional support from an appropriate funding body to continue the research.

The recipients of the Conquer CF (GI) Innovation Grant are required to provide progress reports on their research to CFA every six months. In addition, and where appropriate, the recipient will be asked to make a presentation at a CFA conference (held every two years) in Australia.

The maximum amount awarded for the Conquer CF Innovation Grant will be $50,000. The actual amount provided will be subject to approval of the applicant’s budget.

Applications can be made through the CFA website and must be received no later than 5pm AEST on Friday, June 25, 2021.

APPLY HERE

This generous group doesn’t ask for recognition but we can’t let this donation pass without acknowledgment. We would like to extend a big thank you to the car dealers in Bunbury and all their supporters who contributed to the wonderful golf day held in March, 2021.

We are incredibly grateful for your ongoing support.

The Rotary Club of Busselton Geographe Bay has handed our charity a cheque for $14,000. These funds were raised through a golf day and cocktail party held on the end of the stunning Busselton Jetty in March. We are so incredibly grateful for this support. We thank all those who supported this event including its major sponsors the Professionals Real Estate Busselton and William Barrett and Sons. It means so much to our community to know you are behind us in this fight to make Cystic Fibrosis a manageable or, ultimately, curable disease. Conquer Cystic Fibrosis South West coordinator Taryn Barrett said that at a time when many events have had to be cancelled due to Covid-19, the generous support of the Busselton community was greatly appreciated.  “We are overwhelmed by the support of this Rotary Club and the wider Busselton community,” she said.

“There are more than 3400 Australians fighting this devastating disease every day and for locals impacted, it means the world to know that the community is behind us.”

Attendees were inspired on the evening by a speech delivered by Cystic Fibrosis advocate Jackie Fraser, just four months after her double lung transplant.

The winners of the raffle held as part of the fundraising initiatives were:

1. Ron Mildenhall

2. Natalie pretlove

3. Fiona Byrne

4. Malcolm Craig

5. Craig Wilson

Did you know that you can help raise money for Conquer Cystic Fibrosis simply by shopping on line?

With mothers day just around the corner you can find the perfect mothers day gift while at the same time raising funds for our cause. By signing up with Shopnate you will gain access to 100s of shops that raise funds for Conquer Cystic Fibrosis at absolutely no extra cost to you!

Stores include, eBay, Edible Blooms, Bockers & Pony, Easy Flowers and more. It’s really easy!

To sign up simply click here

We would like to extend a huge thank you to everyone that attended and supported the Rotary Club of Busselton-Geographe Bay’s golf day and cocktail party for Conquer Cystic Fibrosis.

Many hours of work went into this event by a number of people and without the support of everyone involved the event simply could not have happened.  A number of businesses and individuals contributed in various ways to the success of the event and assisted to keep costs to an absolute minimal.

The golf day for CF began in 2017 through the inspiration of Ross Johnston and with the support of Cystic Fibrosis WA in Perth.   After a hiatus in 2020 a new partnership was formed with the support of Taryn Barrett and Jackie Fraser from Conquer Cystic Fibrosis South West which lead to this year’s event.

A number of items were donated to raffle and auction at the event, with donations also made to sponsor the golf holes.

While the final figure is not yet known as raffle tickets continue to be sold, at this point more than $10,500 has been raised from the event.

To everyone involved… Thank you, Thank you, Thank you!

We could not achieve our fundraising goals without the support of local community events like the golf day.

   

  

Don’t miss your chance to own this amazing painting.

Generously donated by Suzy French, Wave from the “Slice of Country Collection” is a stunning oil painting 20cm x 90cm on aluminium

To place as bid on this stunning artwork simply click here

As the Christmas holiday season approaches and you collect more recyclable containers why not support us by recycling through the Containers for Change scheme?  Containers for Change provides a wonderful opportunity for you to raise much needed funds for CCF simply by recycling your recyclable containers!

CCF has set up a scheme ID so all donations will flow directly to us.  Our scheme ID is C10365598

So why not turn your containers into change and help us to Conquer Cystic Fibrosis.

 

 

We have some very exciting news to share with you.

Through your ongoing support CCF has been able to fund Australia’s first gastrointestinal-specific funding scheme for CF research with the first grant recently being awarded.

The winning submission for the inaugural $50,000 grant is a promising one.  Put simply, the project will examine gut inflammation, and the microbiome, and hopefully lead to the development of personalised treatments such as CF-specific probiotics.

The study is vital because both inflammation and poor microbiome health in CF are linked to poor growth, GI symptoms and increased cancer risk.  Despite these common complications in our community, no GI-specific therapies for those with CF currently exist.

As part of the study, stem cells obtained from gut biopsies from people with CF will be used to grow 2D and 3D organoid culture systems which aims to replicate real life (“mini guts”).

Lead researcher Associate Professor Keith Ooi said the study was a crucial step towards personalised therapies. “Successful personalised therapies would revolutionise CF treatments and other conditions subject to host-microbe interactions,” he said.

Prof. Ooi said there needed to be a more significant focus to be placed on GI clinical care and research and thanked the supporters of Conquer Cystic Fibrosis for making this grant possible.  “Historically gut issues were the primary cause of death in children with CF,” he said.  “The introduction of pancreatic enzymes and a high-fat and high-calorie diet played a vital part in enabling people with CF to live long enough to develop lung disease, which has become the primary cause of death.

“Understandably, the research focus has been focussed on the lungs in recent decades and CF-specific gastrointestinal research has taken a back seat.  “However, as the CF community well knows, gastrointestinal issues are vast, serious, life-limiting and at times embarrassing.”  As well as suffering from minimal research focus, Prof. Ooi said there was also a need for more gastrointestinal physicians to be embedded in CF clinics across Australia.

This is something Cystic Fibrosis Australia, our state organisations and our community can continue to keep in mind and lobby for in coming years.

Thanks to research, people with CF are living longer but it’s vital we keep investing in research to combat the vast array of complications this disease throws at us.
This grant is being delivered by the Australian Cystic Fibrosis Research Trust.

We would like to extend our heartfelt thanks to the team at Cystic Fibrosis Australia for the vital support they have provided in making this research a reality.

Pictured below is lead researcher, Associate Professor Keith Ooi.

On 22 August 2020 swimmers braved the cold to raise funds for vital Cystic Fibrosis research.

Thirty brave souls plunged into the 13 degree waters at Matilda Bay. They certainly reported their breath being taken away – a feeling the 3400 Australians with Cystic Fibrosis face each day.

Through their amazing efforts a total of $28,640.00 was raised from the event.

This money will ensure vital funds will go directly to Australian Cystic Fibrosis research.

This year our charity has had to cancel our biggest events so this result means the world to us, especially for the families that live with this disease every day.

Thank you to each and every one of you that participated in and made this event possible.  Heartfelt thanks especially to event organisers Gary and Caroline Claydon who put together another fantastic annual event which is now in its third year!!

All the money raised from the swim will support vital CF research.

Have you bought your 2020/2021 Entertainment Membership?

Buy a membership today to receive heaps of great deal, plus for a short time, Conquer Cystic Fibrosis will receive double the usual funds!

Don’t delay purchase yours today!!

 

Bingo for Conquer Cystic Fibrosis is back!!

Over the next few weeks (until we get over this intial Covid-19 ease of restrictions) the Bingo team will be selling bingo books and flyers at the following prices at all bingo centres:

We hope to see you all back at Bingo soon!

This announcement will come as no surprise in light of the current Covid-19 pandemic, however it breaks our heart to have to make it.

The 2020 Capel Vale Conquer Cystic Fibrosis Grand Ball has been cancelled.

The health of our loved ones with Cystic Fibrosis and the wider community is paramount and wecannot put anyone at risk.

What this means is that at least $200,000 will not be raised for CF research in Australia this year. Everyone at CCF is absolutely devastated by this especially given how desperately it is needed.

Our Committee will be considering alternatives to try to raise these research funds, without holding a Ball. For example, we may still hold our online silent auction with the generous donations we have already received this year.

We are a team of passionate volunteers committed to extending the lives of the 3400 Australians living with Cystic Fibrosis through research. This will continue but there is no doubt we will take a big hit this year.

If you were planning to attend or support our grand ball in any way, we would love it if you could consider making a donation that will help ensure we can continue to meet some of our ongoing commitments to researchers.

Please stay safe and please take precautions in coming days, weeks and months to protect our most vulnerable.

We need to take care of each other through social distancing and hand hygiene to survive 2020 together.

Research of global significance is well underway here in WA and that is all thanks to your generosity!

We are thrilled to announce that we recently handed over $50,000 to the amazing CF research team at the Telethon Kids Institute. Those funds will fund an exciting Artificial Intelligence project which has the potential to drastically improve CF care worldwide.

We also received an update on the $20,000 we granted to the Institute last year which kick started an international collaboration of experts looking at a new molecular method which detects Aspergillus. It does so by looking for its DNA samples taken during a bronchoscopy. That project is showing immense promise and Dr Luke Garratt is leading this work with collaborators in Singapore who are now contributing more than $80,000.

For those who may not be aware, Aspergillus is the main fungus cultured in the airways of patients with CF and it is associated with airway damage and lung function decline.  Better detection leads to quicker and more effective treatment to reduce the damage this fungus inflicts.

The delivery of these funds and the success of the Institute’s research so far is great news for the 3300 Australians with Cystic Fibrosis.

One of those is 4-year-old Connor Barrett (pictured) whose future looks much brighter thanks to the clever minds and dedication of the Telethon Kids Institute team.

He is pictured with Development Manager Erin Hurson and world-renowned researcher and clinic Professor Stephen Stick to celebrate the big leaps forward.

However that’s not where the Conquer Cystic Fibrosis  contributions stop.

This year we are also granting funds to the Institute for Respiratory Health ($200,000), the Australian Cystic Fibrosis Research Trust ($100,000), Cystic Fibrosis WA ($10,000) and purchasing a state-of-art Ex Vivo Lung Perfusion machine which will improve the safety of transplants at Fiona Stanley Hospital ($280,000). More updates to come on those donations.

We are incredibly proud of these achievements considering we are a 100% volunteer-run charity started only 16 years ago right here in WA.

Thank you for making a difference.

THANK YOU!!!

To everyone who attended to the Capel Vale Conquer Cystic Fibrosis Grand Ball 2019.   As a result of your support and all of our generous donors, we raised an incredible $197,426.73 (profit) on the night!

  This brings the total raised by Bingo for CCF, all other CCF related fundraisers and donations in the last 12 months to an incredible

$496,924.66 

(Profit!!)

This means we will be able to purchase the Ex Vivo Lung Perfusion machine immediately!

Because we are a 100% volunteer run charity, it also means we will be able to continue grants of over $200,000 to the Institute for Respiratory Health, the Telethon Kids Institute, the Australian Cystic Fibrosis Research Trust and CFWA for vital Cystic Fibrosis research and services again this year.

From the bottom of all our collective hearts at CCF – THANK YOU to everyone who is supporting us to Conquer Cystic Fibrosis

 

The auction site for all items available at this year’s Capel Vale Conquer Cystic Fibrosis Grand Ball is now open!

You don’t need to be at the Ball to bid and win – simply log on and start bidding.

It is quick and easy. Click on the item you are interested in and place your bid. If you are out-bid, you will be notified by text!

We have everything from extremely rare and limited Aboriginal art by internationally acclaimed Aboriginal artist “Wadgee” Sheila Humphries, to Capel Vale Wines, accommodation (in Dunsborough, Geographe Bay, Myalup, Malayisia and Dubai), restaurant vouchers, jewellery, kids’ toys, Eagles and Dockers memorabilia, and a 10Kg block of chocolate. There is definitely something for everyone!

Bidding is available from now until 11pm on the night of the Ball (18 May 2019).

Don’t miss out! Log on and start bidding now!

Yesterday was an early start for the CCF team as we embarked on our storage unit at Storage King Landsdale for our annual wrap day for all our tombola and silent auction items for the Ball.

Five lovely friends of our committee member Fiona joined us and they blitzed through all the wrapping! Thank you ladies, with your help we managed to get through all the wrapping in no time!  From everyone at CCF we would like to extend a huge thank you to Tracey Brooke, Jude Dunford, Sandy McKenzie, Gail Abbott and Jacky Edwards.

Every little bit helps and your support will go a long way to helping us raise the money we need to find the cure for Cystic Fibrosis.

We would also like to acknowledge Lisa at Storage King Landsdale for her ongoing support. Each year at wrap day we pretty much take over the storage unit and she happily lets us get on with what we need to do. Thank you again so very much Lisa.

Pictured below are the wonderful ladies that came along to help us!  We are all getting very excited for the Ball this year.

Tickets are selling fast so make sure you get yours today!!

    

This year we are thrilled to be celebrating 16 years of Capel Vale Wines Gold Sponsorship of the Conquer Cystic Fibrosis Grand Ball.

To celebrate this amazing milestone the wonderful team at Capel Vale Wines is offering you a 25% discount off your wine purchases!

Don’t delay, to take advantage of this very generous offer simply go to the Capel Vale online wine shop by clicking here.

Once you have placed your order please apply the coupon code “CFBALL2019”. By applying this code 25% will be automatically deducted at the checkout.

A number of additional wines have been added to this deal so don’t miss out order yours today!!

“Love Wine, Love Capel Vale”

 

Mark your calendars!

You’re invited to join us at

The Capel Vale  Conquer Cystic Fibrosis  Grand Ball 2019

Date: Saturday 18th May, 2019

Time:  7.00pm

Venue: Crown Perth Grand Ballroom

Cost: $210.00 per person

Dress: Formal

Tickets on sale 25 March 2019

As a 100% volunteer run organisation, ALL proceeds raised at the Ball will benefit Cystic Fibrosis research.

Would you like to do more to help us find the cure?  You too can join our increasing number of CCF Angels by making a regular donation to CCF.

For more information about the CCF Angels program please email us or sign up by clicking here

You can also keep up to date with all the CCF news including information about the release of Ball tickets via our Facebook page.  Simply visit and like our page for more information.

On Saturday 12 May 2018 more than 650 people united at the Crown Perth Grand Ballroom to raise vital money for Cystic Fibrosis research. The event was officially opened by a very special little girl from Margaret River who spoke about how Cystic Fibrosis impacts her life.

Thank you Arrabella. You are why we do what we do, for you, and the 3,300 other Australians living with this disease. #conquercf

Bouncing on a trampoline is a fun and effective way for people with cystic fibrosis to exercise and also to help them clear mucus from their lungs. Of course, bouncing on a trampoline is just one part of other, wider cystic fibrosis treatment, but it’s definitely one of the more fun treatments out there! With campaigns like the Big Bounce attracting worldwide attention, fundraising and participation, we wanted to share some of the wonderful health benefits that bouncing on a trampoline can have for your child who is living with cystic fibrosis.

Exercise + treatment

Your child’s physiotherapy is probably one of the hardest parts of their treatment. Daily exercise and ongoing therapy are vital to minimise the mucus build up in their lungs and airways. While bouncing on a trampoline is not a traditional method of treatment, many young cystic fibrosis patients are using a trampoline to complement their treatment. Some physicians are also recommending a trampoline for their patients to help with enhancing their cardiopulmonary performance, and to improve their general wellbeing.

Improve mood and energy levels

When you are bouncing on a trampoline it is hard to feel anything except joy after just a couple of bounces! Hopping onto a trampoline and bouncing has the dual purpose of working to elevate your child’s mood and to enhance their energy levels. If you haven’t heard of trampolining as an optional part of your child’s treatment, please, of course, consult your physician first prior to rushing out and buying a trampoline!

It’s self-treatment

A lot of the time, your child living with cystic fibrosis will be going to doctors and physiotherapists and having to complete exercises with not a lot of control over what they do and how. This is just part of their care; but with trampolining, your child can play by themselves or with friends while at the same time getting some effective treatment. Bouncing on a trampoline is an active, independent exercise with results which are thought to be indistinguishable from traditional treatments like percussion treatment and chest physiotherapy. The duration of bouncing will change depending on your child’s treatment needs – so be sure to speak to your doctor or therapist if you are considering trampoline therapy for your child.

Remember, safe bouncing is vital

You probably remember the days where trampolines were rectangular, where the springs were a finger death trap, and the metal sides were an accident waiting to happen! But times have changed; there are safe trampoline options available on the market now. Companies like Vuly make springless and safe-spring trampoline models for safe bouncing. And of course, always supervise your kids whenever they are playing outside on the trampoline for their safety.

Start shopping NOW!

We have some amazing items available on the Silent Auction this year for the Capel Vale Conquer Cystic Fibrosis Grand Ball – from overseas holidays, toys, art and football jumpers. And you can start shopping now!

To see all of the items, and bid (before and at the ball), you just need to follow these simple steps:
Text: CCF followed by your full name to 0458 678 678
Example: CCF Brad Pitt
Follow the registration link you are sent from GalaBid to login and place bids.
Please note: capitals are not required.

For more information about bingo please click here

Unfortunately our Wednesday night Bingo sessions are currently closed due to renovations being completed at the Vasto Club.

We will update you as soon as we know when Wednesday night Bingo will be back up and running.

In the meantime Monday night Bingo at Middle Swan continues as normal.

Today one of our wonderful Committee members and volunteers Taryn received a prestigious Cystic Fibrosis Australia advocacy award.  Her award was  presented by the Governor General of Australia, Sir Peter Cosgrove, at his Kirribilli residence. Some of you will remember Taryn as she was the guest speaker at the 2017 Capel Vale Conquer Cystic Fibrosis Grand Ball.

Taryn is passionate about the need for more medical research into Cystic Fibrosis (CF) and is also a strong advocate for placement of Orkambi on the PBS. She has spoken out loudly and widely and said that she accepted the award yesterday with a heavy heart because the lengthy negotiations to get Orkambi on the PBS appear to be going backwards.

Taryn said “this award is an opportunity to speak out about the need for changes to the processes for funding breakthrough medicines, not only fo Orkambi but those in the pipeline. Medicines which treat the underlying cause and that may well lead to CF becoming a manageable disease in the foreseeable future”.

Taryn does all that she does for her son Connor and the 3300 other Australians living with Cystic Fibrosis.

All of us at CCF would like to extend our congratulations to Taryn on this wonderful achievement.

    

#conquercysticfibrosis #conquercf #cfresearch #cysticfibrosisaustralia #weneedorkambi #australianeedsorkambi #vertexpharmaceuticals

We like to extend a huge THANK YOU to all those behind Laundry 43 Catering Line whose Melbourne Cup Luncheon raised an incredible $20,511.00 for Conquer Cystic Fibrosis.

We would like make a special mention of Karis, Cliff and Candace. Also a shout out to Karen Kemp from Professionals Real Estate and  Hyde Park property host Kristy Zabaznow.

Special thanks also to major sponsors:

• Mable & Grace,
• The Little Things Design & Events,
• Professional’s South West,
• Nina’s Jewellers, and
• Cape Events

As a result of all your efforts, more funds will be flowing to the researchers who are working feverishly to extend the lives of the 3300 people living with Cystic Fibrosis. 

That is truly invaluable.

Now this puts the ‘fun’ back into fundraising.

Last year several people supported CCF by hosting a Christmas pudding bake off in their own home. All you need to do is gather up all your friends, enjoy some bubbly and make your Christmas delights together! Or if you prefer to mix liquids rather than solids, perhaps a Christmas cocktail night might be the go. Just get festive and help our greatest Christmas wish come true while doing so. We have the pudding recipe sheet and simple tips to host your event all ready to send out to you. Simply email us to express your interest.

Simple as that!

This week we were devastated to learn of the passing of Coen Ashton.

Cystic Fibrosis is a cruel disease and on Wednesday afternoon sadly it claimed yet another young life.  Coen was 20 years old and one of the greatest, brightest and most entertaining advocates for Cystic Fibrosis research and organ donation. We were so lucky to meet him when he flew over to Perth to be the guest speaker at the 2014 Capel Vale Conquer Cystic Fibrosis Grand Ball.

Coen amazed and inspired the nation with his quick wit, smile, courage and passion.  He was a tireless advocate for organ donation and twice jet skied along the Murray River to sign up donors.

We extend our deepest condolences to Coen’s loved ones at this very sad time.

Father’s day is soon upon us. Treat a dad you love to something special and help us out all at the same time at absolutely NO EXTRA COST TO YOU.  Sign up to Shopnate here.  There are hundreds of big brand shops (including eBay), deals and coupons to select from and they all donate to Conquer Cystic Fibrosis at the same time.  It only takes a minute to register to shop.

Its too easy! It really is…

Did you know that you can support CCF simply by booking a holiday??

Simply book your travel plans with the Flight Centre West Perth and 10% of the profits will be donated to Conquer Cystic Fibrosis.

For all your travel inquiries, please call the store directly on 9486 9988 or email them direct for an experienced travel consultant to assist you.

We would like to extend a huge Thank You to Kelsie Miller and everyone that went along and supported the Good Nights intimate gigs in Bunbury cafes recently.

The various Good Nights events raised the targeted $1000 for our very worthy charity.

Good nights is a generous small business that links live music with people – in their homes, cafes, small bars or unique venues.  It is part of a big increase in the arts culture of Bunbury and we are so pleased that Conquer Cystic Fibrosis was chosen to be their charity partner.

 

We would like to extend a huge Thank You to Myriam Quinn for taking the lead to support Conquer Cystic Fibrosis this year.

Myriam has not only has offered to donate an original piece of art for our upcoming Capel Vale Conquer Cystic Fibrosis Grand Ball, she is also selling paintings and donating all the proceeds of these sales to CCF through her Studio (Artisix Studios and Gallery) located at the Mezze shopping Centre in Mount Hawthorn.

Thank you so much Myriam, and your fellow owners/artists Jacqueline Penton-Skipp, Peter Campagna, and Tury Sicari for your generosity, compassion and talent!

To explore the amazing art at Artisix Studios and Gallery click here

Bistro Bella Vista is a wonderful supporter of Conquer Cystic Fibrosis.

Bistro Bella Vista will very generously donate 10% of the cost of your meal back to CCF!!

Simply tell one of the friendly staff when settling your account that you would like to support CCF.

This offer has been extended until the end of April.

Please support the wonderful people that support us and pop into Bistro Bella Vista before the end of April!

We are delighted to announce that we now have a “South West” branch of Conquer Cystic Fibrosis and have several events already planned for 2017.

We encourage all families from the South West region impacted by CF to get in touch and learn more about CCF South West by contacting Taryn Barrett (0448 883 758 or taryn@conquercysticfibrosis.com).

To keep up with happenings please like our main facebook page and also www.facebook.com/CCFSouthWest