29 May 2021

Gastrointestinal focus for new CCF Grant

Through the support of our wonderful donors and supporters, over the past 19 years, we have donated almost $1M to the Australian Cystic Fibrosis Research Trust.

The Trust enlists a scientific panel, with consumer support, to assess applications by researchers to determine where this money is best spent. Some projects funded through the Trust are now being used globally in clinical care and we are proud to be a part of this.

This week, grant submissions were called to spend our most recent donation. This is the second time we have funded a gastro-intestinal research project because it is an area of great need. It is currently the only CF-specific GI grant opportunity in Australia. However as our community knows, the digestive pain, surgeries and lifelong GI complications are an immense burden on the 3400 Australians living with CF. CF is more than a lung disease and that is why we are proud to support more research in this field.

GRANT ALERT

Conquer CF (GI) Innovation Grant 2021

This grant is looking for ‘big thinkers’ with great innovative ideas who will make a difference through research to the CF community.  It is open to post-doctoral researchers, scientists, clinicians, medical practitioners, nurses and allied health currently working in the area of cystic fibrosis (CF) or proposing to work in CF research in the gastro-intestinal (GI) field. GI is defined here to include any part of the GI tract, as well as directly related issues such as nutrition and digestion, and closely associated organs and tissues such as the pancreas, liver and kidney. The researchers will have completed their studies in CF or a related area within the past five years.

The Conquer CF (GI) Innovation Grant will allow a CF researcher to explore novel concepts at the initial feasibility stage. Innovative applications relating to GI aspects of CF are encouraged, even those lacking pilot data. The grant aims to allow the researcher to generate sufficient data within the one-year grant period to be in a position to apply for additional support from an appropriate funding body to continue the research.

The recipients of the Conquer CF (GI) Innovation Grant are required to provide progress reports on their research to CFA every six months. In addition, and where appropriate, the recipient will be asked to make a presentation at a CFA conference (held every two years) in Australia.

The maximum amount awarded for the Conquer CF Innovation Grant will be $50,000. The actual amount provided will be subject to approval of the applicant’s budget.

Applications can be made through the CFA website and must be received no later than 5pm AEST on Friday, June 25, 2021.

APPLY HERE

26 May 2021

Bunbury Car Dealers do it again…

This generous group doesn’t ask for recognition but we can’t let this donation pass without acknowledgment. We would like to extend a big thank you to the car dealers in Bunbury and all their supporters who contributed to the wonderful golf day held in March, 2021.

We are incredibly grateful for your ongoing support.

7 May 2021

Fundraising success in Busselton & raffle results

The Rotary Club of Busselton Geographe Bay has handed our charity a cheque for $14,000. These funds were raised through a golf day and cocktail party held on the end of the stunning Busselton Jetty in March. We are so incredibly grateful for this support. We thank all those who supported this event including its major sponsors the Professionals Real Estate Busselton and William Barrett and Sons. It means so much to our community to know you are behind us in this fight to make Cystic Fibrosis a manageable or, ultimately, curable disease. Conquer Cystic Fibrosis South West coordinator Taryn Barrett said that at a time when many events have had to be cancelled due to Covid-19, the generous support of the Busselton community was greatly appreciated.  “We are overwhelmed by the support of this Rotary Club and the wider Busselton community,” she said.

“There are more than 3400 Australians fighting this devastating disease every day and for locals impacted, it means the world to know that the community is behind us.”

Attendees were inspired on the evening by a speech delivered by Cystic Fibrosis advocate Jackie Fraser, just four months after her double lung transplant.

The winners of the raffle held as part of the fundraising initiatives were:

1. Ron Mildenhall

2. Natalie pretlove

3. Fiona Byrne

4. Malcolm Craig

5. Craig Wilson

27 April 2021

Shopping to Conquer Cystic Fibrosis

Did you know that you can help raise money for Conquer Cystic Fibrosis simply by shopping on line?

With mothers day just around the corner you can find the perfect mothers day gift while at the same time raising funds for our cause. By signing up with Shopnate you will gain access to 100s of shops that raise funds for Conquer Cystic Fibrosis at absolutely no extra cost to you!

Stores include, eBay, Edible Blooms, Bockers & Pony, Easy Flowers and more. It’s really easy!

To sign up simply click here

Friday 19 March 2021

Rotary Golf Day and Cocktail Party

We would like to extend a huge thank you to everyone that attended and supported the Rotary Club of Busselton-Geographe Bay’s golf day and cocktail party for Conquer Cystic Fibrosis.

Many hours of work went into this event by a number of people and without the support of everyone involved the event simply could not have happened.  A number of businesses and individuals contributed in various ways to the success of the event and assisted to keep costs to an absolute minimal.

The golf day for CF began in 2017 through the inspiration of Ross Johnston and with the support of Cystic Fibrosis WA in Perth.   After a hiatus in 2020 a new partnership was formed with the support of Taryn Barrett and Jackie Fraser from Conquer Cystic Fibrosis South West which lead to this year’s event.

A number of items were donated to raffle and auction at the event, with donations also made to sponsor the golf holes.

While the final figure is not yet known as raffle tickets continue to be sold, at this point more than $10,500 has been raised from the event.

To everyone involved… Thank you, Thank you, Thank you!

We could not achieve our fundraising goals without the support of local community events like the golf day.

   

  

Sunday 7 March 2021

Walk the Talk

On Sunday 7 March 2021 a fabulous day was enjoyed by all that participated in the inaugural “Walk the Talk for Conquer Cystic Fibrosis”.

Thank you to everyone that came along to the walk . We were all left feeling truly inspired after hearing our wonderful ambassador Jackie Fraser speak about her journey since receiving her new lungs in November 2020.

We would like to extend our heartfelt thanks to all of the amazing CCF volunteers that helped out on the day, but would especially like to send a very special thank you to our beautiful volunteer Rita for all her hard work and determination in making this event a reality!  Through Rita’s determination and unwavering commitment she has raised an amazing $25,488.17 for our cause!

Thank you Rita from the bottom of all our collective hearts.

1 February 2021

Walk the Talk On-line Auction

Don’t miss your chance to own this amazing painting.

Generously donated by Suzy French, Wave from the “Slice of Country Collection” is a stunning oil painting 20cm x 90cm on aluminium

The movement of the water is repetitive, rhythmic, calming.  Suzy watches the sea foam as its tendrils are pulled back across the face of the wave, then it crashes forward, spitting and hissing as it comes in across the sand.

Suzy’s paintings are held in collections across Australia and overseas, she works out of her Broome based Studio Gallery and is represented by Gallery’s in both Western Australia and Victoria.

To place as bid on this stunning artwork simply click here

10 December 2020

Recycling to Conquer Cystic Fibrosis

As the Christmas holiday season approaches and you collect more recyclable containers why not support us by recycling through the Containers for Change scheme?  Containers for Change provides a wonderful opportunity for you to raise much needed funds for CCF simply by recycling your recyclable containers!

CCF has set up a scheme ID so all donations will flow directly to us.  Our scheme ID is C10365598

So why not turn your containers into change and help us to Conquer Cystic Fibrosis.

 

 

21 September 2020

Gastrointestinal specific funding scheme for CF research

We have some very exciting news to share with you.

Through your ongoing support CCF has been able to fund Australia’s first gastrointestinal-specific funding scheme for CF research with the first grant recently being awarded.

The winning submission for the inaugural $50,000 grant is a promising one.  Put simply, the project will examine gut inflammation, and the microbiome, and hopefully lead to the development of personalised treatments such as CF-specific probiotics.

The study is vital because both inflammation and poor microbiome health in CF are linked to poor growth, GI symptoms and increased cancer risk.  Despite these common complications in our community, no GI-specific therapies for those with CF currently exist.

As part of the study, stem cells obtained from gut biopsies from people with CF will be used to grow 2D and 3D organoid culture systems which aims to replicate real life (“mini guts”).

Lead researcher Associate Professor Keith Ooi said the study was a crucial step towards personalised therapies. “Successful personalised therapies would revolutionise CF treatments and other conditions subject to host-microbe interactions,” he said.

Prof. Ooi said there needed to be a more significant focus to be placed on GI clinical care and research and thanked the supporters of Conquer Cystic Fibrosis for making this grant possible.  “Historically gut issues were the primary cause of death in children with CF,” he said.  “The introduction of pancreatic enzymes and a high-fat and high-calorie diet played a vital part in enabling people with CF to live long enough to develop lung disease, which has become the primary cause of death.

“Understandably, the research focus has been focussed on the lungs in recent decades and CF-specific gastrointestinal research has taken a back seat.  “However, as the CF community well knows, gastrointestinal issues are vast, serious, life-limiting and at times embarrassing.”  As well as suffering from minimal research focus, Prof. Ooi said there was also a need for more gastrointestinal physicians to be embedded in CF clinics across Australia.

This is something Cystic Fibrosis Australia, our state organisations and our community can continue to keep in mind and lobby for in coming years.

Thanks to research, people with CF are living longer but it’s vital we keep investing in research to combat the vast array of complications this disease throws at us.
This grant is being delivered by the Australian Cystic Fibrosis Research Trust.

We would like to extend our heartfelt thanks to the team at Cystic Fibrosis Australia for the vital support they have provided in making this research a reality.

Pictured below is lead researcher, Associate Professor Keith Ooi.

17 September 2020

Forrest Family Foundation supporting CCF

It’s been a tough year for the community and unfortunately this has had a significant impact on funding for research.

Despite having to cancel our major fundraising event for the year and a number of others, we are incredibly fortunate to still have generous donations coming in from our loyal donors.

Today we would like to thank the Forrest Family Foundation. We are so grateful to be able to keep the funding flowing to our dedicated researchers this year to ensure the beautiful young people living with Cystic Fibrosis get the chance to live life to the full with the dream of them growing old doing so.

From everyone at CCF we thank you so much for your generous support.