5 January 2022

Buy a burger and support CCF!

Happy New Year everyone!

Wow we have kick started 2022 in such a fantastic way by being selected by Grill’d Subiaco to participate in the Local Matters program throughout January!

However we need your support…

All you need to do is pop into Grill’d Subiaco order a burger and you’ll be given a token to vote in-restaurant or online. Simply place your token in the CCF jar to vote for our cause.

What better excuse to pop out and enjoy a delicious Grill’d burger right?

1 January 2022

Our Year in Review

It’s been another rollercoaster year but, with your support, we have continued on our mission to Conquer Cystic Fibrosis.  While we were not able to host the Capel Vale Conquer Cystic Fibrosis Grand Ball this year, we were fortunate to be supported by Bingo for Conquer Cystic Fibrosis and a range of other fundraising activities including:

  • The annual Dare to Care Swim
  • The inaugural ‘Walk the Talk’ Walk
  • Gabriella’s 60km walk in honour of Jayde Kinane
  • The 70km Cape to Cape walk by Holly and her friends
  • The CCF Angels giving program
  • Ascot Race Day event
  • Little Cotta Co. pop up shop in honour of Jayde Kinane
  • Busselton-Geographe Bay Rotary Club Golf Day and cocktail party on the jetty
  • Plant selling by Bella Fairbrass
  • Kalea Co fundraising support by Kiah
  • Crazy Hair Day at Bunbury Cathedral Grammar School
  • The wedding of Kate and Peter
  • Leanne’s Christmas Wreath making

Through this support, and the support of very generous individual donors, CCF has been able to establish and contribute to very significant research projects, including the following:

  • $200,000 to the Institute for Respiratory Health as part of our $1m commitment to CF adult research.
  • $100,000 to the Australian Cystic Fibrosis Research Trust to fund two CF research grants (respiratory and gastroenterology)
  • $200,000 to the Telethon Kids Institute for a research project targeting the window of vulnerability in young children with CF.
  • $7500 to CFPhysio.com Inc for the development of online resources to support people with CF, their caregivers and CF physiotherapy.
  • $83,000 to establish the Anna Tai fellowship. The Anna Tai fellowship will ensure the CF and Bronchiectasis Research Group can continue to investigate how patients may benefit from novel drug therapies, diagnostic imaging techniques, molecular epidemiology of infection and psychosocial interventions right here in WA. The group are recognised as world leaders and have an extensive collaborative network.

CCF was also able to donate $10,000 to Cystic Fibrosis WA for support services.

The projects we have been able to support all have the potential to drastically improve CF care and outcomes worldwide and extend lives.

In reflection, the loss of our beautiful advocate and friend Jayde Kinane in October left us all devastated but more determined than ever to continue on our mission.  CF is a cruel disease and, ultimately, we need a cure.

So as we begin 2022 we would like to take this opportunity to say thank you and wish you all a very Happy New Year.

 

17 November 2021

The Conquer Cystic Fibrosis Christmas Appeal

Christmas is a time of celebration happiness and goodwill. More importantly it is a time of bringing hope to the 3400 Australians and their families living with Cystic Fibrosis.

No Cystic Fibrosis story is the same… however, this condition is life-limiting and relentless. Our amazing group of volunteers strive for a world where all children can live a life unaffected by Cystic Fibrosis.

This Christmas, we need your support more than ever.  Cystic Fibrosis never takes a break, and neither do we.

You can help us to continue our fight against Cystic Fibrosis by making a donation to the Conquer Cystic Fibrosis Christmas Appeal. With your generous support we can continue to fund the lifesaving research needed to find the cure.

Pictured below is baby Charlie (who has Cystic Fibrosis) with his big sister Matilda.  Charlie has had a rough start to life with surgeries on bowel blockages and IV’s for respiratory infections. He still manages to smile though and is adored by his big sister.

We cannot thank you enough for your ongoing support during what has been very challenging times for everyone.

From all of us at Conquer Cystic Fibrosis we wish you all a very Merry Christmas.

Friday 29 October 2021

Festival of Frights! Cancelled

We are so sorry to report that we have made the difficult decision to postpone next Friday’s Festival of Frights Halloween event.

We are looking at holding another event at the Perth City Farm in the months ahead but to date no firm plans have been made. All tickets sold for the festival of frights have been refunded.

The CCF team are grieving right now and we need time to pay tribute to our beautiful Jayde who tragically passed away on Monday 18 October 2021.

Please be assured though, as Jayde would have wanted, we will be back soon hosting events to continue raising the funds to support life-extending research into the devastating disease cystic fibrosis is.

We thank you for your understanding.

Jayde you truly were a CF warrior.  We will all miss you so very much x

29 May 2021

Gastrointestinal focus for new CCF Grant

Through the support of our wonderful donors and supporters, over the past 19 years, we have donated almost $1M to the Australian Cystic Fibrosis Research Trust.

The Trust enlists a scientific panel, with consumer support, to assess applications by researchers to determine where this money is best spent. Some projects funded through the Trust are now being used globally in clinical care and we are proud to be a part of this.

This week, grant submissions were called to spend our most recent donation. This is the second time we have funded a gastro-intestinal research project because it is an area of great need. It is currently the only CF-specific GI grant opportunity in Australia. However as our community knows, the digestive pain, surgeries and lifelong GI complications are an immense burden on the 3400 Australians living with CF. CF is more than a lung disease and that is why we are proud to support more research in this field.

GRANT ALERT

Conquer CF (GI) Innovation Grant 2021

This grant is looking for ‘big thinkers’ with great innovative ideas who will make a difference through research to the CF community.  It is open to post-doctoral researchers, scientists, clinicians, medical practitioners, nurses and allied health currently working in the area of cystic fibrosis (CF) or proposing to work in CF research in the gastro-intestinal (GI) field. GI is defined here to include any part of the GI tract, as well as directly related issues such as nutrition and digestion, and closely associated organs and tissues such as the pancreas, liver and kidney. The researchers will have completed their studies in CF or a related area within the past five years.

The Conquer CF (GI) Innovation Grant will allow a CF researcher to explore novel concepts at the initial feasibility stage. Innovative applications relating to GI aspects of CF are encouraged, even those lacking pilot data. The grant aims to allow the researcher to generate sufficient data within the one-year grant period to be in a position to apply for additional support from an appropriate funding body to continue the research.

The recipients of the Conquer CF (GI) Innovation Grant are required to provide progress reports on their research to CFA every six months. In addition, and where appropriate, the recipient will be asked to make a presentation at a CFA conference (held every two years) in Australia.

The maximum amount awarded for the Conquer CF Innovation Grant will be $50,000. The actual amount provided will be subject to approval of the applicant’s budget.

Applications can be made through the CFA website and must be received no later than 5pm AEST on Friday, June 25, 2021.

APPLY HERE

26 May 2021

Bunbury Car Dealers do it again…

This generous group doesn’t ask for recognition but we can’t let this donation pass without acknowledgment. We would like to extend a big thank you to the car dealers in Bunbury and all their supporters who contributed to the wonderful golf day held in March, 2021.

We are incredibly grateful for your ongoing support.

7 May 2021

Fundraising success in Busselton & raffle results

The Rotary Club of Busselton Geographe Bay has handed our charity a cheque for $14,000. These funds were raised through a golf day and cocktail party held on the end of the stunning Busselton Jetty in March. We are so incredibly grateful for this support. We thank all those who supported this event including its major sponsors the Professionals Real Estate Busselton and William Barrett and Sons. It means so much to our community to know you are behind us in this fight to make Cystic Fibrosis a manageable or, ultimately, curable disease. Conquer Cystic Fibrosis South West coordinator Taryn Barrett said that at a time when many events have had to be cancelled due to Covid-19, the generous support of the Busselton community was greatly appreciated.  “We are overwhelmed by the support of this Rotary Club and the wider Busselton community,” she said.

“There are more than 3400 Australians fighting this devastating disease every day and for locals impacted, it means the world to know that the community is behind us.”

Attendees were inspired on the evening by a speech delivered by Cystic Fibrosis advocate Jackie Fraser, just four months after her double lung transplant.

The winners of the raffle held as part of the fundraising initiatives were:

1. Ron Mildenhall

2. Natalie pretlove

3. Fiona Byrne

4. Malcolm Craig

5. Craig Wilson

27 April 2021

Shopping to Conquer Cystic Fibrosis

Did you know that you can help raise money for Conquer Cystic Fibrosis simply by shopping on line?

With mothers day just around the corner you can find the perfect mothers day gift while at the same time raising funds for our cause. By signing up with Shopnate you will gain access to 100s of shops that raise funds for Conquer Cystic Fibrosis at absolutely no extra cost to you!

Stores include, eBay, Edible Blooms, Bockers & Pony, Easy Flowers and more. It’s really easy!

To sign up simply click here

Friday 19 March 2021

Rotary Golf Day and Cocktail Party

We would like to extend a huge thank you to everyone that attended and supported the Rotary Club of Busselton-Geographe Bay’s golf day and cocktail party for Conquer Cystic Fibrosis.

Many hours of work went into this event by a number of people and without the support of everyone involved the event simply could not have happened.  A number of businesses and individuals contributed in various ways to the success of the event and assisted to keep costs to an absolute minimal.

The golf day for CF began in 2017 through the inspiration of Ross Johnston and with the support of Cystic Fibrosis WA in Perth.   After a hiatus in 2020 a new partnership was formed with the support of Taryn Barrett and Jackie Fraser from Conquer Cystic Fibrosis South West which lead to this year’s event.

A number of items were donated to raffle and auction at the event, with donations also made to sponsor the golf holes.

While the final figure is not yet known as raffle tickets continue to be sold, at this point more than $10,500 has been raised from the event.

To everyone involved… Thank you, Thank you, Thank you!

We could not achieve our fundraising goals without the support of local community events like the golf day.

   

  

Sunday 7 March 2021

Walk the Talk

On Sunday 7 March 2021 a fabulous day was enjoyed by all that participated in the inaugural “Walk the Talk for Conquer Cystic Fibrosis”.

Thank you to everyone that came along to the walk . We were all left feeling truly inspired after hearing our wonderful ambassador Jackie Fraser speak about her journey since receiving her new lungs in November 2020.

We would like to extend our heartfelt thanks to all of the amazing CCF volunteers that helped out on the day, but would especially like to send a very special thank you to our beautiful volunteer Rita for all her hard work and determination in making this event a reality!  Through Rita’s determination and unwavering commitment she has raised an amazing $25,488.17 for our cause!

Thank you Rita from the bottom of all our collective hearts.