CCF received a wonderful Christmas gift from AMD Chartered Accountants recently. The company has made a generous donation to our cause. A donation which will go directly to medical research to improve and extend the lives of people with Cystic Fibrosis. Hopefully such research will mean, that in the years to come, children and adults with CF will not have to spend the festive season in a hospital bed.

This year the South West community has shown its incredible generosity and compassion in supporting our cause.

So today we say a big thank you to AMD Chartered Accountants and all those who are behind us.

In partnership with the Institute of Respiratory Health, CCF has established an innovative research program centred around adults living with CF.

The program is a collaborative partnership that is based at the Sir Charles Gairdner Hospital’s WA Adult Cystic Fibrosis Service, which provides a statewide service for the clinical care of adult CF patients.  Through this program we offer up to three PhD Scholarships each year in the following categories

Conquer Cystic Fibrosis Advanced Clinical PhD Scholarship

Conquer Cystic Fibrosis Allied Health Professional PhD Scholarship

Conquer Cystic Fibrosis Scientist PhD Scholarship

The PhD scholarship support is available to clinicians and allied health professionals interested in adult CF care to encourage development of an ongoing stream of experienced, qualified and highly skilled physicians and allied health professionals in adult CF care in Western Australia.

The recipients of the scholarships gain experience and training to become a specialist in their field of adult CF care and in the future, will be capable of leading high quality clinical studies from Western Australia.

We are thrilled to announce the 2016 scholarship Winners:

Alishum Ali
University of Western Australia
Clinical Research Fellowship
PhD project title:
Molecular microbiology of complex respiratory infections: in cystic fibrosis and empyema

Abbey Sawyer
Curtin University
Allied Health PhD Scholarship
PhD project title:
What is the most appropriate form of High Intensity Interval Training (HIIT) in the Cystic Fibrosis (CF) population and does this type of training improve exercise capacity and adherence to exercise in adults with CF?

Dr Anna Tai
Respiratory Consultant
Sir Charles Gairdner Hospital, Respiratory Medicine Department
Research Project
Project title:
Clostridium difficile infection in adult patients with cystic fibrosis in Western Australia (WA): disease burden and clinical impact.

Conquer Cystic Fibrosis Chairperson Wendy Endebrock-Brown said the partnership between the Institute for Respiratory Health and Conquer Cystic Fibrosis allows funds raised to stay in WA.

“We are thrilled that the money we have raised is being used to fund these important research projects and help retain top quality clinicians in WA,” she said.

Pictured below are the 2016 winners with CCF Chairperson Wendy Endebrock-Brown and also include Wendy handing over the cheque to Peter Gunzburg, Chair of the Institute of Respiratory Health’s Board.

       

We would like to extend a huge congratulations to all the winners, but more importantly Thank You!! Without your support we could not fund the scholarships and subsequent research that is being completed right here in Western Australia. We all hope that this research will one day lead to the cure for Cystic Fibrosis.

Everyone at CCF would like to extend a huge thank you to the Zaccaria family and their incredibly hard working team that put together a truly fabulous Family and Friends Cocktail Party for Conquer Cystic Fibrosis on Saturday 14 May 2016.

This wonderful group of people raised an incredible amount of money with the final profit figure being a staggering

$58,009.00.

From the bottom of all our hearts we thank you!

The Family and Friends Cocktail Party is organised bi-annually and since the first cocktail party this amazing family have raised a staggering $144,800.65 for CF research.

The team at CCF are in awe of your desire to help us raise money to help find the cure for Cystic Fibrosis. We cannot thank you enough.

We would also like to extend a huge thank you to all the people that came along and supported the event. We are sure you would agree that it was a truly wonderful night.

 

In January 2016 CCF received a bequest from the Will of Marjorie Gibson for the very generous amount of $20,000.

Marjorie and her husband, Lawrence, had 2 children with Cystic Fibrosis.  Eleanor died in 1953 at the age of 19 months and her sister, Gwenda, passed away aged 12 in 1972.  Gwenda was diagnosed at 6 months old and, whilst Eleanor was not officially diagnosed, her symptoms were very similar to Gwenda’s.

Marjorie recently passed away at the age of 96 and had always hoped that a cure would be found for Cystic Fibrosis.  We, too, hope that Marjorie’s wish will be fulfilled and her bequest of $20,000 will be put to good use to help fund research into finding a cure for CF.

Thank You so much Marjorie.