It’s been another rollercoaster year but, with your support, we have continued on our mission to Conquer Cystic Fibrosis. While we were not able to host the Capel Vale Conquer Cystic Fibrosis Grand Ball this year, we were fortunate to be supported by Bingo for Conquer Cystic Fibrosis and a range of other fundraising activities including:
- The annual Dare to Care Swim
- The inaugural ‘Walk the Talk’ Walk
- Gabriella’s 60km walk in honour of Jayde Kinane
- The 70km Cape to Cape walk by Holly and her friends
- The CCF Angels giving program
- Ascot Race Day event
- Little Cotta Co. pop up shop in honour of Jayde Kinane
- Busselton-Geographe Bay Rotary Club Golf Day and cocktail party on the jetty
- Plant selling by Bella Fairbrass
- Kalea Co fundraising support by Kiah
- Crazy Hair Day at Bunbury Cathedral Grammar School
- The wedding of Kate and Peter
- Leanne’s Christmas Wreath making
Through this support, and the support of very generous individual donors, CCF has been able to establish and contribute to very significant research projects, including the following:
- $200,000 to the Institute for Respiratory Health as part of our $1m commitment to CF adult research.
- $100,000 to the Australian Cystic Fibrosis Research Trust to fund two CF research grants (respiratory and gastroenterology)
- $200,000 to the Telethon Kids Institute for a research project targeting the window of vulnerability in young children with CF.
- $7500 to CFPhysio.com Inc for the development of online resources to support people with CF, their caregivers and CF physiotherapy.
- $83,000 to establish the Anna Tai fellowship. The Anna Tai fellowship will ensure the CF and Bronchiectasis Research Group can continue to investigate how patients may benefit from novel drug therapies, diagnostic imaging techniques, molecular epidemiology of infection and psychosocial interventions right here in WA. The group are recognised as world leaders and have an extensive collaborative network.
CCF was also able to donate $10,000 to Cystic Fibrosis WA for support services.
The projects we have been able to support all have the potential to drastically improve CF care and outcomes worldwide and extend lives.
In reflection, the loss of our beautiful advocate and friend Jayde Kinane in October left us all devastated but more determined than ever to continue on our mission. CF is a cruel disease and, ultimately, we need a cure.
So as we begin 2022 we would like to take this opportunity to say thank you and wish you all a very Happy New Year.